Monday, July 16th – Day +56
Hi Everyone,
Well, it wasn’t a real easy weekend for Mike. I did call the clinic today and talk to a PA. They just had gotten the results back on a culture they ran last Thursday for the BK Virus, so that has something to do with his urinary problems this past weekend. He was up and going many times during the night which just makes him wiped out during the day. Hence, everyone gets frustrated because he’s tired and not wanting to do too much and we’re tired and wanting him to do more!! So, the PA told me today that they will run an infusion (2 hours) on him tomorrow after his clinic for the virus and that should help – hope it works quick!! 
Also, we tried to get his shower in this afternoon – big mistake. He was way too tired and couldn’t stand up to finish his shower and get out of the tub. So, he had to sit for about 15 minutes until Rick came to help him stand up. Once he was up I helped him finish up and get out of the tub. Lesson learned – shower in the morning when Mike has the most stamina!!
As you can see it is really day to day here right now. The PA told me that everything actually sounds normal to her since he isn’t that far out from his BMT yet. That is why they tell the patients that they will most likely not go back to work for a year. I’m beginning to believe it. It is going to be a long, slow process. I did talk to our brother Rick today and said that during the week when I need to be home for an evening that he will need to be here to get Mike off to bed. That way Mom isn’t on her own trying to do her own night things and help Mike with his too.
Please keep praying. We are all getting a littled frayed at this point but are really trying to hang in there and get Mike back on his feet. We know that there is a light at the end of all this it’s just a little hazey at the moment. Thanks for all of your support it is greatly appreciated!
love, Ann