Sunday, August 12th – Day +83

Hi Everyone,

Well, I am heading to Ann Arbor tomorrow to see Mike.  A little earlier in the week than I planned but I think he needs me to come down.  Mom called me today saying that Mike needed to talk to me and couldn’t find my number.  I called him and he had had a cat scan of his neck.  He has a virus that makes him look like he has the mumps on one side of his neck and it is very painful.  A BMT Doc saw him again today and sent him for the scan.  Of course he was very upset, he even asked again if it was the CLL returning.  While I was on the phone with him an ENT came in and said that it looked like he has an inner or middle ear infection.  They are treating it.  Mike was relieved to say the least.  He was also thinking that I might be visiting him today and was totally upset thinking that I might not find him when they took him for the scan.  I think he is still on many meds and they do have an effect on his thinking.  So, I told him I’d come tomorrow and do his laundry and visit with him in between therapy if he has some sessions.  I told him that if I came to his room and he wasn’t there – believe me – I’d find him.  He was much calmer after we talked.

He is getting close to the 100 day mark and I think that he is nervous.  They will be doing a bone marrow biopsy and other tests at that time and they are the ones that really show that all the CLL is gone.  We already know that it is gone since his 35 day test was clean.  But I am sure that when you are in the midst of this you want to know again and again that all is fine.

Mom was doing good.  She didn’t have therapy or see a doc again today.  Sally (Rick’s wife) is supposed to call her doc tomorrow and check out when someone from his office will see mom.  Sally and I are also taking mom to a spine specialist on Friday to see if anything can be done about her severe Kyphosis (hunch back).  I’ll keep you posted on that!

Thanks for the prayers – be prayer warriors right now for Mike because he is definitely still in a very fragile state.

love, Ann

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